Monday, May 2, 2016

One Year Blog-iversary

     When someone told me the night of April 29th, 2015, that I should write a book about my life, the logical step to take was to just start writing.  But, my wife encouraged me to do it through a blog, because a) it would be refined enough to be in (or close to) "publication form," and 2) writing for an audience right away, rather than just in the long term, would provide motivation to keep going.  Now, it is just over a year later (the blog-iversary was on April 30th) and I have written more in this past year than in any other in my life.  I posted 126 entries, which means I wrote and published something on just over one-third of the days in the past year.  And, over these past 366 days, my writing has been read over 10,700 times. 

     My wife, as she always is, was correct-- telling my story though a blog was the best way to approach writing a book.  I have only about seven or eight "parts' of my life yet to write about, some more lengthy than others, before I can send my work to a few select people who have agreed to help me with the editing and proofreading process.  That will be a major step toward this blog becoming a book, but as one of my mentors stressed, "It isn't about writing, it's about re-writing."  I accept that I'm further away from being ready to contact publishers (I have a lead or two but if you know of anyone, let me know!) than I'd like to believe. 

     In the meantime, below is a post that contains links to the video of my speech from just over one year ago, as well as a link to the transcript of that speech. 

     I want to thank those of you who read this, whether you know me personally, whether you live half a world away and only know me through this blog, or both-- my former student in Germany is, I think, the only person in that category.  Your readership has been a huge motivating factor that has kept me coming back to the keyboard much more often than I otherwise would have.  You will definitely get special mention in my book.  Not individually, of course, though if you all want to send me your names I can make an appendix or something. ;)  And if this is your first time reading my posts, welcome aboard!  Most people who "follow" me do so through the open group page on Facebook called "Student, Teacher, Husband, Father: Evin's CF Journey."  Maybe I should think about shortening that group name.  ;)

~~ Alright, enough of all that... a previous blog entry with the aforementioned links are below!

     I am very happy to share the video of my speech at the CF Family Education Night.  U of M created a social work focused website with a Cystic Fibrosis subsection, and they have linked the video there.  By going to this link and clicking Part 2, you can see my entire speech, including the question and answer session which followed.  As far as I can tell, the speech will play on mobile devices as well as regular operating systems.  If you already read the speech when I posted it, you will see that I pretty much stuck to the script, with a few notable exceptions.  I am so grateful for having had the chance to speak at this even and for all of the great questions people asked after I spoke.  I also can't thank Dr. Simon enough.  He was my pulmonologist for 14 years prior to my transplant and gave me a better introduction than I could have asked for.  Feel free to let me know your thoughts or ask any additional questions in the comments section, or by contacting me through Gmail.  

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