In my speech at the CF Family Retreat, I referenced the book I wrote in second grade, I'm Short and Have CF. It provides an excellent glimpse into the perspectives of 8-year-old Evin. The entire text of the story appears below, along with a few photos of some of the more precious illustrations.
Short is not fun. Sometimes I get in people's way. I'm the shortest one in my class, and probably the whole school too!
But I can run fast! It makes me feel good that I can run fast.
It's not my fault that I'm short. I was born that way.
My lungs collapsed and I have Cystic Fibrosis, that's why I'm short.
Every six months I have to go to Detroit to have a check up. I have to take enzymes to grind up my food.
Every night I have a treatment. I sit on my mom or dad. They cup their hands and hit me gently.
Except for having CF, I'm okay. Even though I'm short, I do have friends and that makes me feel good!